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On this page, you will find information on the Agency’s activities that are most relevant to patients and carers, including news, and events.

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News for patients and carers

Events of interest

  • 29/05/2018 - 30/05/2018

    EMA

    RD-ACTION / EMA / DG SANTE workshop: how European Reference Networks can add value to clinical research

    The main objective of this workshop organised by the European Medicines Agency (EMA), RD-ACTION (the European Joint Action for Rare Diseases) and the European Commission’s Directorate General for Health and Food Safety (DG SANTE), is to explore how to work together with the European Reference Networks (ERNs) in the field of complex and rare diseases. The workshop will look at how EMA and ERNs can reinforce each other’s efforts to encourage and facilitate research into new treatments for rare and low-prevalence complex diseases and how ERNs could be engaged in EMA activities. The first ERNs were launched in March 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 European Union countries. Presently, 24 ERNs are operational covering a large range of therapeutic areas. ... Read more

  • 07/06/2018

    EMA

    2018 Annual workshop of the European Network of Paediatric Research at the European Medicines Agency (Enpr-EMA)

    Enpr-EMA will hold its tenth annual workshop on 7-8 June 2018 at EMA. The workshop brings relevant stakeholders together to discuss requirements, barriers and opportunities for the conduct of high-quality clinical studies in children. The overall theme of this year’s workshop will be a ‘holistic approach to paediatric research’. Highlights of this year’s workshop include: i) short perspectives of the various stakeholders involved in paediatric research (patient/young people advisory groups, research networks, learned societies, national paediatric associations/societies, ethics committees, regulators, Health Technology Assessment bodies and industry); and ii) an interactive general discussion on how to avoid duplication of trials, how to improve communication, how to divide work between groups and on the challenges of clinical trials in (ultra) rare diseases. The following day is reserved for discussions among the members of Enpr-EMA. ... Read more

  • 08/06/2018

    EMA

    European network of paediatric research at the European Medicines Agency (Enpr-EMA) Coordinating Group and networks meeting

    The 2018 face-to-face meeting of Enpr-EMA networks and coordinating members takes place after the annual open workshop on 8 June. The networks meeting will focus on the outcome of the 2018 annual workshop of the 7 June and the action plan for 2018/2019. ... Read more

  • 04/06/2018 - 05/06/2018

    HMPC

    Committee for Herbal Medicinal Products (HMPC): 4-5 June 2018

    The Committee on Herbal Medicinal Products (HMPC) is the committee that is responsible for preparing the Agency’s opinions on questions relating to herbal medicines. ... Read more

  • 11/06/2018 - 14/06/2018

    PRAC

    Pharmacovigilance Risk Assessment Committee (PRAC): 11-14 June 2018

    The Pharmacovigilance Risk Assessment Committee (PRAC) is the committee that is responsible for assessing all aspects of the risk management of medicines for human use. ... Read more

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