Patients' and Consumers' Working Party

The Patients' and Consumers' Working Party (PCWP) provides a platform for exchange of information and discussion of issues of common interest between EMA and patients and consumers.

The PCWP, established in 2006, has enabled the Agency to build upon its existing interactions with patients and consumers. It provides recommendations to EMA and its human scientific committees on all matters of interest in relation to medicines.

The following documents provide information on the PCWP's responsibilities and composition:

The Patients' and Consumers' Working Party (PCWP)

Composition

The PCWP consists of:

The members' declarations of interests are available in the European experts list.

Co-chairs

AffiliationCo-chairs
EMAJuan Garcia Burgos
European Patients' Forum (EPF)Kaisa Immonen

Organisation representative members

Member organisationRepresentative(s)
AGE Platform Europe (AGE)

Barbro Westerholm

Julia Wadoux

Anne-Sophie Parent

Alzheimer Europe (AE)

Jean Georges

Ana Maria Diaz Ponce

European AIDS Treatment Group (EATG)

Giulio Maria Corbelli

Nikos Dedes

European Cancer Patient Coalition (ECPC)

Aikaterini Apostolidou

Rafal Swierzewski

The European Consumers' Organisation (BEUC)

Francesca Cattarin

Cristina Cabrita

European Federation of Allergy and Airways Diseases Patients' Associations (EFA)

Erna Botjes

Caroline Heilpern

European Federation of Neurological Associations (EFNA)

Cathalijne van Doorne

Joke Jaarsma

European Heart Network (EHN)Christine Dehn
European Institute of Women's Health (EIWH)

Hildrun Sundseth

Margaret Maguire

European Multiple Sclerosis Platform (EMSP)

Christoph Thalheim

Elisabeth Kasilingam

European Organisation for Rare Diseases (EURORDIS)

Francois Houyez

Tatiana Foltanova

European Patients' Forum (EPF)

Michal Rataj

European Prostate Cancer Coalition (EUomo)

André Deschamps

Ken Mastris

European Public Health Alliance (EPHA)

Sascha Marschang

Ioannis Natsis

Health Action International Europe (HAI)

Ancel.la Santos Quintano

Courtney Davis

International Alliance of Patients' Organizations (IAPO)

Albert van der Zeijden

Kawaldip Sehmi

International Diabetes Federation European Region (IDF Europe)

Joao Manuel Valente Nabais

Simon O'Neill

International Patient Organisation for Primary Immunodeficiencies (IPOPI)

Jose Drabwell

Leire Solis Garate

Myeloma Patients Europe (MPE)

Ananda Plate

Kathryn Elun Morgan

Patients Network for Medical Research and Health (EGAN)

Nick Meade

Louise Coleman

Members representing EMA's scientific committees

Scientific CommitteeRepresentative(s)
Committee for Advanced Therapies

Kieran Breen

Michelino Lipucci di Paola

Committee for Medicinal Products for Human Use

Harald Enzmann

Concepción Prieto Yerro

Committee for Orphan Medicinal ProductsDaniel O'Connor
Committee on Herbal Medicinal Products

Steffen Bager

Steinar Madsen

Paediatric Committee

Dimitrios Athanasiou

Paola Baiardi

Pharmacovigilance Risk Assessment Committee

Marco Greco

Albert van der Zeijden

Observers

Observer affiliationRepresentative(s)

EMA Management Board

Yann Le Cam

Ilaria Passarini

Healthcare Professionals Working PartyDonald Singer
European Commission (DG SANTE)Rotating membership

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