EU/3/17/1970

Table of contents

About

On 17 January 2018, orphan designation (EU/3/17/1970) was granted by the European Commission to Rare Partners srl Impresa Sociale, Italy, for sirolimus for the treatment of sickle cell disease.

The sponsor’s address was updated in May 2020.

Key facts

Active substance
Sirolimus
Disease / condition
Treatment of sickle cell disease
Date of first decision
17/01/2018
Outcome
Positive
EU designation number
EU/3/17/1970

Sponsor's contact details

Rare Partners srl Impresa Sociale
Via Giovanni Boccaccio 20
20123 Milano
Italy
Tel. +39 034 0704 5710
Fax +39 024 507 4463
E-mail: info@rarepartners.org

Patients' organisations

For contact details of patients’ organisations whose activities are targeted at rare diseases, see:

  • European Organisation for Rare Diseases (EURORDIS), a non-governmental alliance of patient organisations and individuals active in the field of rare diseases.

  • Orphanet, a database containing information on rare diseases, which includes a directory of patients’ organisations registered in Europe.

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