Patients' and Consumers' Working Party

Table of contents

The Patients' and Consumers' Working Party (PCWP) provides a platform for exchange of information and discussion of issues of common interest between EMA and patients and consumers.

The PCWP, established in 2006, has enabled the Agency to build upon its existing interactions with patients and consumers. It provides recommendations to EMA and its human scientific committees on all matters of interest in relation to medicines.

The following documents provide information on the PCWP's responsibilities and composition:

The Patients' and Consumers' Working Party (PCWP)

Meetings

For information on upcoming and past meetings of the PCWP, including meeting materials, see:

Composition

The PCWP consists of:

The members' declarations of interests are available in the European experts list.

Co-chairs

AffiliationCo-chairs
EMAJuan Garcia Burgos
TBCTBC

 

Organisation representative members

Member organisationRepresentative(s)
AGE Platform Europe (AGE)Barbro Westerholm 
Fifi Groenendijk
Alzheimer Europe (AE)Angela Bradshaw 
Cindy Birck
European AIDS Treatment Group (EATG)Nikos Dedes 
Bogdan Hadarag
European Cancer Leagues (ECL)Wendy Yared
Ward Rommel
European Consumers' Organisation (BEUC)Ancel.la Santos Quintano
Sylvia Maurer
European Federation of Allergy and Airways Diseases Patients' Associations (EFA)Isabel Proaño Gómez 
Erna Botjes
European Foundation for the Care of Newborn Infants (EFCNIAisling Walsh
Johanna Kostenzer
European Federation of Neurological Associations (EFNA)Joke Jaarsma
Orla Galvin

European Heart Network (EHN)

 

Marilena Vrana
Christine Dehn

European Institute of Women's Health (EIWH)Hildrun Sundseth
Peggy Maguire  
European Liver Patient Association (ELPA)Marko Korenjak
Ivana Dragojević
European Organisation for Rare Diseases (EURORDIS)

Francois Houyez
Russell Wheeler

European Patients' Forum (EPF)Kaisa Immonen
Marco Greco
European Prostate Cancer Coalition (EUomo)

André Deschamps
Will Janssen

European Public Health Alliance (EPHA)Rosa Castro
Milka Sokolović
Global Alliance for Mental Illness Advocacy Networks (GAMIAN-Europe)Jacinta Hastings 
Nigel Olisa
Health Action International Europe (HAI)Courtney Davis 
Jaume Vidal
International Diabetes Federation European Region (IDF Europe)João Valente Nabais 
Iryna Vlasenko
International Patient Organisation for Primary Immunodeficiencies (IPOPI)

Jose Drabwell
Leire Solis Garate

Myeloma Patients Europe (MPE)Hans Scheurer
Kate Morgan
Thalassaemia International Federation (TIF)Angelo Loris Brunetta
Lily Cannon
World Duchenne Organization (UPPMD)

Elizabeth Vroom
Sally Hofmeister

 

Members representing EMA's scientific committees

Scientific CommitteeRepresentative(s)
Committee for Advanced Therapies

TBC

Committee for Medicinal Products for Human Use

Concepción Prieto Yerro
Fàtima Ventura

Committee for Orphan Medicinal ProductsTim Leest
Committee on Herbal Medicinal ProductsAn Le
Olga Maria Palomino
Paediatric Committee

Dimitrios Athanasiou
Johannes Taminiau

Pharmacovigilance Risk Assessment Committee

TBC

 

Observers

Observer affiliationRepresentative(s)

EMA Management Board

TBC

 

Healthcare Professionals Working PartyTBC
European Commission (DG SANTE)Rotating membership
Coordination Group for Mutual Recognition and Decentralised Procedures - Human (CMDh)Nina Malvik

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