Patients' and Consumers' Working Party

The Patients' and Consumers' Working Party (PCWP) provides a platform for exchange of information and discussion of issues of common interest between EMA and patients and consumers.

The PCWP, established in 2006, has enabled the Agency to build upon its existing interactions with patients and consumers. It provides recommendations to EMA and its human scientific committees on all matters of interest in relation to medicines.

The following documents provide information on the PCWP's responsibilities and composition:

The Patients' and Consumers' Working Party (PCWP)

Composition

The PCWP consists of:

The members' declarations of interests are available in the European experts list.

Co-chairs

AffiliationCo-chairs
EMAJuan Garcia Burgos

 

Organisation representative members

Member organisationRepresentative(s)
AGE Platform Europe (AGE)

Barbro Westerholm

Julia Wadoux

 

Alzheimer Europe (AE)

Jean Georges

Cindy Birck

European AIDS Treatment Group (EATG)

Giulio Maria Corbelli

Nikos Dedes

European Cancer Patient Coalition (ECPC)

Aikaterini Apostolidou

Rafal Swierzewski

European Consumers' Organisation (BEUC)

Ancel.la Santos

Jelena Malinina 

European Federation of Allergy and Airways Diseases Patients' Associations (EFA)

Erna Botjes

Panagiotis Chaslaridis

European Federation of Neurological Associations (EFNA)

Joke Jaarsma

European Heart Network (EHN)

 

Marilena Vrana

Christine Dehn

European Institute of Women's Health (EIWH)

Hildrun Sundseth

Margaret Maguire

European Liver Patient Association (ELPA)

Marko Korenjak

Teresa Casanovas Travull

European Multiple Sclerosis Platform (EMSP)

Christoph Thalheim

Elisabeth Kasilingam

European Organisation for Rare Diseases (EURORDIS)

Francois Houyez

European Patients' Forum (EPF)Kaisa Immonen
European Prostate Cancer Coalition (EUomo)

André Deschamps

Will Janssen

European Public Health Alliance (EPHA)

Sascha Marschang

Global Alliance for Mental Illness Advocacy Networks (GAMIAN-Europe)Jacinta Hastings
Health Action International Europe (HAI)

Courtney Davis

Elita Poplavska

International Diabetes Federation European Region (IDF Europe)

Joao Manuel Valente Nabais

Iryna Vlasenko

International Patient Organisation for Primary Immunodeficiencies (IPOPI)

Jose Drabwell

Leire Solis Garate

Myeloma Patients Europe (MPE)

Ananda Plate

Kathryn Elun Morgan

Thalassaemia International Federation (TIF)

Michael Michael

Lily Cannon

World Duchenne Organization (UPPMD)

Elizabeth Vroom

Sally Hofmeister

 

Members representing EMA's scientific committees

Scientific CommitteeRepresentative(s)
Committee for Advanced Therapies

Bernd Gänsbacher

Committee for Medicinal Products for Human Use

Concepción Prieto Yerro

Fàtima Ventura

Committee for Orphan Medicinal ProductsTim Leest
Committee on Herbal Medicinal Products

Steffen Bager

Gert Laekeman

An Le

Paediatric Committee

Dimitrios Athanasiou

Johannes Taminiau

Pharmacovigilance Risk Assessment Committee

Virginie Hivert

 

Observers

Observer affiliationRepresentative(s)

EMA Management Board

Marco Greco

Ioannis Natsis

 

Healthcare Professionals Working Party(To be advised)
European Commission (DG SANTE)Rotating membership
Coordination Group for Mutual Recognition and Decentralised Procedures - Human (CMDh)Gabriele Eibenstein

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