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On 20 February 2007, orphan designation (EU/3/07/435) was granted by the European Commission to Pharming Group N.V., Netherlands, for recombinant human C1-inhibitor for the prevention of delayed graft function in organ transplant.

Key facts

Active substance
Recombinant human C1-inhibitor
Disease / condition
Prevention of delayed graft function after solid organ transplantation
Date of first decision
EU designation number

Sponsor's contact details

Pharming Group N.V.
Darwinweg 24
2333 CR Leiden
The Netherlands
Telephone: +31 71 52 47 400
Telefax: +31 71 52 47 445

Patients' organisations

For contact details of patients’ organisations whose activities are targeted at rare diseases, see:

  • Orphanet, a database containing information on rare diseases, which includes a directory of patients’ organisations registered in Europe.

  • European Organisation for Rare Diseases (EURORDIS), a non-governmental alliance of patient organisations and individuals active in the field of rare diseases.

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